Surviving long enough to make it to the next advance in CF research became a theme in my life.
As my mother faced what she later said was one of her most difficult challenges of coercing a very weak little boy to master walking and crawling up the steps, researchers struggled to find treatments that would at the very least make life more comfortable for children with CF and hopefully would prolong their lives. for me, my parents struggle to keep me alive was paralleled by the efforts of doctors and researchers. With an overall life expectancy of 6 for the average CF patient at that time, and 2 yrs.